6th Patient Centricity & Collaboration World Congress 2024 Americas

Patient empowerment and understanding to inspire and create a meaningful impact

  • 00Days
  • 00Hours
  • 00Minutes
  • 00Seconds

Patient meets Innovation & Collaboration

Understanding the Patient Journey, enabling a more Patient-Centric Approach.

Paradigm Global Events is proud to welcome you to the upcoming Patient Centricity and Collaboration World Congress 2024 Americas. 

The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.



This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology, and healthcare companies.

Network with representatives involved in the following areas:

0 +
days Congress
0 +
0 +

Key Industry Expert Speakers

2023 / 2024 Speaking Faculty 

Tricia Mullins

Global Head, Patient Advocacy

Atara Biotherapeutics

Alan J. Balch ,PhD.


National Patient Advocate Foundation



Sickle Cell Thalassemia Patients Network

Wendy Erler

VP Patient Advocacy STAR & LEAP

Alexion Pharmaceuticals, Inc

Jocelyn Duff

Co-Founder/Executive Director

CureCMT4J/Talia Duff Foundation

Judith L. Campagnari

Executive Director, Head, Global Patient Insights and Solutions (GPIS)

Alexion Pharmaceuticals


Vice President of Corporate Affairs & Patient

Advocacy, Epizyme


VP and Head of Strategic Partnerships and Innovation

Myovant Sciences


Founder, Living with Dys

Patient Leader & Advocate



International Pain Foundation


Founder and Director


Frank Rivera


Stronger Than Sarcoidosis


Founder & Executive Director

Jansen's Foundation


Founder & CEO

People with Empathy



Texas Rare Alliance

Emily Parks


POP! Pissed Off Patients

Jill McNair, MBA

Chief Growth Officer

Center for Information Study on Clinical Research Participation (CISCRP)

Marianne Gandee

VP, Patient Solutions & Alliances

Pfizer Oncology

Tom Croce

Vice President, Global Patient Advocacy

Jazz Pharmaceuticals

Teonna Woolford

Chief Executive Officer

Sickle Cell Reproductive Health Education Directive


Founder & CEO

Data For Patients

Available Shortly

Coming Soon

Available Shortly


Founder, CEO

The Pink Fund

Jason R Crites

Founder & CEO

Assurance Health Data Inc.

Heidi Floyd

Patient Experience SME

Data For Cancer Patient, Author, Advocate Patients

Lesli Nordstrom

Sr. Associate Director, Patient Centricity & Engagement

Boehringer Ingelheim

Available Shortly

Coming soon

Available Shortly

Loriana Hernandez-Aldama,

2x Survivor, Advocate, Author, Educator, Founder

ArmorUp for LIFE®

Sarah Krüg



Paula Orandash

Patient Engagement Liaison

PTC Therapeutics

John Campbell

Head of Decentralized Clinical Trials


Juliette Chen

Global Evidence and Outcomes Leader


Jodie Gillon

SVP Corporate Affairs & Patient Advocacy


Andrea Furia-Helms, MPH

Director, Patient Affairs


Mike Davis

Head of Global Epilepsy


Maimah Karmo


Tigerlily Foundation

Charlie Barr

Chief Medical Officer,

Adaptic Health

Keri Yale

Head, Patient Affairs & Engagement

Boehringer Ingelheim Pharmaceuticals

Craig Martin


Global Genes

Monica Dudley-Weldon


SYNGAP1 Foundation

Brian Lehman

Director, Patient Advocacy and Strategic Alliances

Sandoz Inc.

Deedar Singh

Director, Patient Engagement and Strategic Alliances

Sandoz Inc.

Dina Matos

Executive Director

CARES Foundation

Nélio Drumond

Associate Director, Lead Process Scientist

Takeda Pharmaceutical

Alexandra Dubois

Vice President, Patient Engagement

The CM Group, An OPEN Health Company

Available Shortly

Coming Soon

Available Shortly

Available Shortly

Coming Soon

Available shortly

Mandy Rohrig

Associate Director of Patient Advocacy

BridgeBio Gene Therapy

Julie Breneiser

Executive Director

Gorlin Syndrome Alliance

Matthew Zachary

CEO and Co-Founder

OffScrip Health

Senior Representative

Available Shortly

Available Shortly

Senior Representative

Available Shortly

Coming Soon


Content Rich Program Agenda!  Featuring Keynote Presentations, Stream Sessions, Panel, and Round Table Discussions.


  • The value of engaging and communicating with the patient in every part of the clinical research process
  • Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes
    through patient engagement
  • How can patient expertise create significant value to the industry?
  • What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma?



Molly MacDonald, Founder, CEO, The Pink Fund

Heidi Floyd, Patient Experience SME, Cancer Patient, Author, Advocate

Christine Von Raesfeld, Founder & CEO, People with Empathy

  • Many biotech/pharmaceutical companies are talking about ”Patient Centricity”, but how can a company actually operate
    in a patient-centric way to create meaningful value?
  • Learn best practices to transition from being product centered to patient centered
  • Discuss strategies to embed patient centricity throughout your organization.

Judy L. Campagnari, Executive Director, Global Patient Insights & Solutions, Alexion Pharmaceuticals

  • Defining the terminology – why this is important
  • Leadership support – why it matters and how to build it
  • Create an Ambassador Program – expand your reach
  • Tools & resources – examples of tools that support employees in being patient centric
  • The journey – why it is a marathon not a sprint -evolving and continually learning as an organization

Keri Yale, Head, Patient Affairs and Engagement, Boehringer Ingelheim

This case study led presentation will explore this evolving dynamic to help formulate best practice approaches to these partnerships by:

  • Sharing insights into a live real-world example of this type of partnership
  • Explaining the roles and responsibilities in achieving a positive outcome
  • Providing key learnings to the evolving process
  • Supplying the audience with guiding principles for future partnerships


  • Learn about the latest technologies that can improve the efficiency and effectiveness of clinical trial design, addressing issues like increasing complexity
  • Discover the principles and best practices for clinical trial design that can increase the likelihood of success, through a combination of literature analysis and practical experience
  • Examine the challenges faced by patients during clinical trials and learn about potential solutions that can reduce the burden and increase the benefits for patients
  • Understand where patient centricity can advance the interests shared by industry and the patient community
  • Consider how focused goals and programs can strengthen research and development, commercialization and access
  • Focus on opportunities to integrate patients, caregivers, consumers and advocates’ key concerns and insights into company plans and decision making
  • Discuss applications of this targeted approach to your patient centricity goals and programs

 Tom Croce, VP, Global Patient Advocacy and Engagement, Jazz Pharmaceuticals Inc

  • Gain insights on how they view a successful patient-centred collaboration
  • Understanding what the patient is looking for and what is important
  • Discuss opportunities for enhanced collaboration in the future
  • Valuable feedback and strategies on how to improve collaboration that makes a real-world difference


 Keri Yale, Head, Patient Centricity & Engagement, Boehringer Ingelheim Pharmaceuticals 


Heidi Floyd, Patient Experience SME, Cancer Patient, Author, Advocate

 Ambre L. Minty, Founder, Living With Dys



 Richard Jones, Managing Director – Patient Engagement, OPEN Health

  • Health Systems sharing clinical data to advance science
  • Patient Advocacy Group’s use of multi-stakeholder
  • 21st Century Cures Act enabling patients to have access to
    all their clinical data and agency to license
  • Combined with emerging trusted data market approaches
  • Creates the opportunity for patient-centric ecosystems at
    scale to accelerate discovery -> clinical adoption

Jason R Crites, Founder, CEO, Assurance Health Data

  • Brief Background on Pfizer Oncology’s Patient Centricity Ecosystem (POPCE): Launching in coordination with advocacy community
  • How to Be Successful –Building trust withing the advocacy community & Identifying Alignment
  • Why it works – Communication, Collaboration & Commitment over time
  • Measure, Measure, Measure – Sharing Successes & Evaluating over time

Marianne Gandee, VP, Patient Solutions & Alliances, Pfizer Oncology

  • Financial Toxicity During Breast Cancer Treatment: A Qualitative Analysis to Inform Strategies for Mitigation

Molly MacDonald, Founder, CEO, The Pink Fund

  • Have patient “Advisors” on a panel for clinical trials.
  • Have a patient advocate/liaison collaborating. Patient Surveys

 Ambre L. Minty, Founder, Living With Dys


  • Education of the process of clinical trials
  • Listen to the Patient needs and help them to understand what the focus of the trial is. Understanding Pharmaceutical costs of trials and research
  • Dealing with an illness with multiple organ involvement.
  • Rare Disease

 Frank Rivera, President, Stronger Than Sarcoidosis

  • Learning: Balancing health system priorities and resources
    to address patient community needs.
  • Creating policy to end disparities and open access to new
    regenerative and translational therapies.
  • Increasing funding and technical support to CBOs for
    community outreach and education efforts

Ginger Davis, President, Sickle Cell Thalassemia Patients

  • How we might innovate our way out of increasing erosion of trust between patients and “the system”, by learning from CPG use cases, nonprofit communications, digital health solutions, shifting trends in consumer media consumption, shared accountability, and increased federal protections.


 Monica Dudley-Weldon, President/CEO/Founder, SYNGAP1 Foundation

  • Integration of the patient perspective into the development
  • Challenges and strategies for improving study protocols
  • Streamline your clinical trial process to drive enrollment

 John Campbell, Head of Decentralized Trials, Walgreens Health

  • Patients and caregivers know best when it means improving the quality of life.
  • Reality is much different than theory.
  • Benefits of real-world experience inserted in basic science equals endpoints and outcomes that can be overlooked as unimportant.

 Monica Dudley-Weldon, President/CEO/Founder, SYNGAP1 Foundation

  • Unique patient populations
  • Clearly identified and addressable pathologies
  • Personalized medicine
  • Role of digital / AI

Mike Davis, Head, Global Epilepsy & Rare Syndromes Organization,

  • Contributions that advocacy groups can make to clinical trial development
  • The importance of knowing the people, their disease, and its burdens
  • Successful collaborations are a win for all

 Julie Breneiser, Executive Director, Gorlin Syndrome Alliance

  • Defining Patient Centricity Explore “Return on
  • Engagement” work done to measure and evaluate the value proposition of Patient-Centric activities in clinical research
  • Reviewing major regulatory developments in support of patient-centred Research.
  • Gain insights from global surveys on patient and public clinical research perceptions and experiences and COVID- 19 impacts
  • Review concrete examples of industry Patient-Centric initiatives and projects

 Jill McNair, Chief Growth Officer, CISCRP

  • Patient perception and usability of drug products is critical for efficacy of prescribed treatments.
  • Drug products should be designed to meet the specific needs of the target patient populations.
  • A patient centric drug product design approach is critical to support optimal therapeutic outcomes for drug products.
  • Roll out of digital technology will support the implementation of a patient centric mindset for drug product design.
  • Case-studies for drug products developed via patient centric drug product design

 Nélio Drumond, Associate Director, Lead Process Scientist, Takeda Pharmaceutical

  • Across the spectrum of disease, from common to rare, patient data is becoming a critical driver of drug discovery, development, diagnosis, commercialization and inclusive and equitable access to trials and treatments.

Craig Martin, President, RITHM Health, Board Director, Global Genes

  • Key factors to consider in designing and operationalising
  • Leveraging technology and trends to engage participants
    Promoting patient-centric care

Christine Von Raesfeld, Founder & CEO, People with Empathy


  • Why diversity and inclusion in clinical trials are crucial?
  • Understanding critical barriers to minority and underserved patient communities participation in clinical trials
  • Actionable ways to improve diversity in clinical trials
  • What can the industry do to promote more diversity in the future?
  • Latest guidelines that make healthcare more inclusive


Christine Von Raesfeld, Founder & CEO, People with Empathy


Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive

John Campbell, Head of Decentralized Trials, Walgreens Health

Lesli Nordstrom, Sr. Assoc. Director, Patient Centricity & Engagement, Boehringer Ingelheim

Julie Breneiser, Executive Director, Gorlin Syndrome Alliance

  • How knowledge can reduce the fear of Pharma and ultimately save lives.
  • What do we really know about patient safety, both as an industry and an individual and what are
    the challenges we face?
  • How can technology play a role in ensuring patient safety, compliance and pharmacovigilance?
  • How we can leverage individual and collective data to ensure proper care and Quality of life while
    reducing damage, saving time and money.

Christine Von Raesfeld, Founder & CEO, People with Empathy

Kristof Vanfraechem, Founder & CEO, Data For Patients

Carolina Consuegra, Co-Founder, Marketing & Strategy Director, Science2People

  • Support different learning styles to ensure patients have equal access to education
  • Patient centricity for better health outcomes
  • How to determine cultural nuances and understandings to care

Paula Orandash, Patient Engagement Liaison, PTC Therapeutics

  • Incorporating robust and meaningful patient engagement for a more informed decision-making
  • Strategies and best practices in facilitating patient recruitment and retention in clinical trials
  • Enhance understanding and use appropriate methods to capture patient understanding of the benefits and risk outcomes
  • How to best communicate patient information to support decision-making

Andrea Furia-Helms, M.P.H., Director, Patient Affairs, Office of Clinical Policy and Programs, U.S. FDA

  • Why measuring patient focused activity is important.
  • How to translate the concept of patient centricity into tangible (and intangible) results.
  • Sharing best practice in driving actionable change benefitting patients.


  • Learn how medical PTSD impacts patients ranging from newly diagnosed to long-term care
  • Understand the category of ways medical PTSD can develop
  • Discover opportunities for patients and providers to collaborate to alleviate symptoms of
    medical PTSD

Emily Parks, Founder, POP!

This presentation will highlight how companies can advance health equity through people- and
patient-centered frameworks. Learning objectives include:

  • Specific domains of action for addressing health equity through people and patient engagement;
  • Success measures of efforts to advance health equity;

Kalahn Taylor-Clark, VP & Head, Strategic Partnerships & Innovation, Myovant Sciences


14:00- 14:30, 14:35 – 15:05

Divided between 2 sessions of 30 mins. (5 mins. to change table) – Attendees have 2 round table options to attend

  • Different interpretations of decision making across stakeholders
  • Value on patient outcomes and engagement (case studies)
  • Introduce the working model of decision making.

Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive

  • Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully
    incorporated into drug development and evaluation.
  • Patient’s input to improve quality, relevance, safety and efficacy of drug development
  • Challenges and opportunities for patient-centric product design
  • The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real


Monica Dudley-Weldon, President/CEO/Founder, SYNGAP1 Foundation

Frank Rivera, President, Stronger Than Sarcoidosis

Nélio Drumond, Associate Director, Lead Process Scientist, Takeda Pharmaceutical

Judy L. Campagnari, Exec. Director, Global Patient Insights & Solutions, Alexion Pharmaceuticals

Barby Ingle, President, International Pain Foundation

Jodie Sherman Gillon, SVP Corporate Affairs & Patient Advocacy, Peptilogics

  • Understanding the drivers for innovation in pharma
  • Partnering with patients and placing patient well-being at the core of all initiatives
  • Real-world data and patient-reported outcomes presents the power and the potential to redesign
  • Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
  • Technologies that enhance the patient-centricity in pharma


Kalahn Taylor-Clark, VP & Head, Strategic Partnerships & Innovation, Myovant Sciences


Ambre L. Minty, Founder, Living With Dys

Jason R Crites, Founder, CEO, Assurance Health Data

Matthew Zachary, CEO and Co-Founder, OffScrip Health

Christine Von Raesfeld, Founder & CEO, People with Empathy

Christine Von Raesfeld, Founder & CEO, People with Empathy

Newsletter Sign Up

No Spam - You will only receive relevant information on Patient Centricity & Collaboration, and event updates


what people say

Thank you for a good experience with the PARADIGM Global Events… very high level, very good Organization, we overpassed our expectatives, we will be pending for another congress related to pharmaceutical and biotech… we learned a lot, and i think that the content of agenda was state of the art, thank you again.
Salvador Berrios
ERP/ CRM / Product Configurator Manager
The consistently high quality of international faculty was most impressive. It was also obvious that they were carefully chosen not only for their particular expertise but also for their ability to communicate the subject matter to clinical and non-clinical participants alike. As market access consultant for pharma clients of various sizes, I now feel much better prepared to explain the nuances & dynamics involved in bringing their products to market. In addition, I am in a much better position to intelligently advice my clients & help them set realistic expectations
Thomas Martin
Associate Vice President, VCGA - Quintiles
I was impressed with the organization of this event. I attend many conferences per year and find the organizers on site to be detached and not focus on good service to the delegates. This team was even providing weather forecast warning to ensure everyone was aware and made appropriate plans. Well Done.
Adriana E. Manzi
PhD, Managing Director, Atheln, Inc

Previous events

Book Your Place Now! 

Register To Attend Now!

Take Advantage of the Super Early Bird Discount. Group Discounts Also Available. 

Event sponsors

Patient Centricity & Collaboration 2023 Partners


Scroll to Top