Home Ā» Agenda Ā» Day 1 – Thursday 3rd October 2024

Day 1 – Thursday 3rd October 2024

08:00 – WELCOME COFFEE & REGISTRATION
08:50 – CHAIRPERSONā€™S OPENING REMARKS

TRENDS & STRATEGIES IN INTEGRATING PATIENT VOICE

09:00 – OPENING KEYNOTE PANEL: Realizing the importance of patient needs and engagement in improving patient outcomes?

  • The value of engaging and communicating with the patient in every part of the clinical research process
  • Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes
    through patient engagement
  • How can patient expertise create significant value to the industry?
  • What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma?

Moderator:

Kalahn Taylor-Clark, PhD, MPH, Vice President and Head of Strategic Partnerships and Innovation, Myovant Sciences

09:45 – PLENARY SESSION: Stop Stealing Dreams

  • Doctors should empower patients during the diagnosis
  • The power of a patient-centric diagnosis
  • Empowered patients are active participants in their healthcare
  • Empowered patients drive innovation that helps them and future patients

Khrystal K Davis, JD, Founding President, Texas Rare Alliance

10:15 – PLENARY KEYNOTE: Integrating social determinants and social needs into patient-centric healthcare models with an emphasis on the patient journey and experience for low-income patients

Alan J. Balch, PhD.,CEO, National Patient Advocate Foundation

10:45 – MORNING NETWORKING REFRESHMENTS
11:30 – SPONSORED SPOTLIGHT: The growing use of digital tools and technologies to enhance the patient experience*

  • Can digital tools and technologies drive a significant increase in patient satisfaction?
  • Improving patient engagement and outcomes through technology
  • What are the benefits of the digital health ecosystem to patient carers and the healthcare systems?

Senior Representative, Open Health

12:00 – PLENARY KEYNOTE: PLENARY KEYNOTE: Putting patients at the core of your company
12:30 – KEYNOTE PANEL: Driving a successful multi-stakeholder collaboration

  • Gain insights on how they view a successful patient-centred collaboration
  • Understanding what the patient is looking for and what is important
  • Discuss opportunities for enhanced collaboration in the future
  • Valuable feedback and strategies on how to improve collaboration that makes a real-world difference

Panellist:

Cheya Pope, Vice President of Corporate Affairs & Patient Advocacy, Epizyme

13:15 – NETWORKING LUNCH – Exhibit Hall

TOPIC FOCUSED STREAM

ACCESS & COLLABORATIONS

14:15 – SESSION CHAIR OPENING REMARKS
14:20 – Multi-stakeholder approach in engaging patients with the new normal in healthcare

  • Harnessing the power of multi-stakeholder collaboration to
    make a scientifically informed recommendation
  • Lessons learned that could benefit the patients
  • Proposed interventions in helping patients to engage

14:50 – Sponsor Session: Addressing the challenges in adopting a successful long term relationship that benefits both patient and business

  • Finding common shared ground between groups and build
    tailored programs within lifecycle activities
  • How can the foundational elements of patient-centred care
    be embedded in the care culture?
  • Effectively setting a common goal to set expectations on
    both sides

15:20 – Helping Patients Navigate the Access Process in order to Start-and-Stay on Therapyā€

TBC

John Daly, Head & VP, Patient Services Immunology & Enterprise Marketing, Novartis

15:50 – AFTERNOON NETWORKING REFRESHMENT
16:30 – Practical ways in putting the patient at the centre of a powerful brand

  • Have patient ā€œAdvisorsā€ on a panel for clinical trials.
  • Have a patient advocate/liaison collaborating.
  • Patient Surveys

Ambre L. Minty, Founder, Living With Dys

17:00 – Bridging the Gap Between Government, Pharmaceutical and Patients on clinical trials and research from a Patient’s perspective

  • Education of the process of clinical trials
  • Listen to the Patient needs and help them to understand
    what the focus of the trial is.
  • Understanding Pharmaceutical costs of trials and research
  • Dealing with an illness with multiple organ involvement.
  • Rare Disease

Frank Rivera, President, Stronger Than Sarcoidosis

17:30 – Successful multi-stakeholder collaboration: A Patientā€™s Perspective

  • Understand one patientā€™s healthcare journey.
  • Gain insights into how patients work best with industry.
  • Understand what the patient is looking for and why itā€™s important.
  • Discuss best practices for enhanced collaboration in the future.

Lisa Deck, Board Member, Moyamoya Foundation & Rare
New England

18:00- CHAIRPERSONā€™S CLOSING REMARKS

Add Your Heading Text Here

14:15 – SESSION CHAIR OPENING REMARKS
14:20 – Involving patient early: Aligning Stakeholders to Ensure Development Plans Meet Patient Needs

  • Integration of the patient perspective into the development process
  • Patient-based evidence that improves the alignment of development activities with the needs of patients

14:50 – Sponsor Session: Patient-Centric Clinical Development: Methods for bringing onboard patient perspective in designing adaptive clinical trials.

  • Collecting, utilising results and collaborating with
    stakeholders to improve patient experience

15:20 – Current trends in clinical research amid the rapidly evolving landscape

  • Importance of successful engagement with patients during COVID-19
  • Lessons learned on improving access and experiences in clinical research

15:50 – AFTERNOON NETWORKING REFRESHMENT
16:30 – This is Not a Trend: Why Patient-Centricity Will Continue to Change the Research Paradigms of the Past

  • Defining Patient Centricity Explore ā€œReturn on
  • Engagementā€ work done to measure and evaluate the value proposition of Patient-Centric activities in clinical research
  • Reviewing major regulatory developments in support of patient-centred Research.
  • Gain insights from global surveys on patient and public clinical research perceptions and experiences and COVID- 19 impacts
  • Review concrete examples of industry Patient-Centric initiatives and projects

Behtash Bahador, Associate Director, CISCRP

17:00 – The new era: virtual patient and public involvement in clinical trials

  • Key opportunities and challenges when working virtually
  • Top tips for effective virtual patient and public involvement
  • The future: the value of continuing working virtually

17:30 – A Clinical Research Professionalā€™s Views on Implementation of Decentralized Clinical Trials.

  • Review existing regulatory and ethical tenets of research and how they must be incorporated into standard practices when implementing decentralization.
  • Educating and empowering the trilogy of research ā€“ sponsors, ethical review boards and the research site to fulfil the mission of decentralization.
  • Explore and partner with existing health care solutions to
    enable established programs to implement the standards of research.
  • Collaborate with shareholders to provide innovative DCT strategies to all research sites.

18:00- CHAIRPERSONā€™S CLOSING REMARKS

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