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Paradigm Global Events is very pleased to welcome you to our upcoming Patient Centricity and Collaboration World Congress 2023 Americas.
The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.

The congress focuses on “Current Trends & Strategies in Patient-centered Drug Discovery and Development”.

Patient-centricity is a vital aspect in the research and development of biopharmaceutical products, disease management, designing a treatment, clinical trial, or other health solutions. In order to create a patient-centric solution, one must truly embrace a collaborative endeavor with the patient and their caregivers. Establishing a patient-centric solution involves getting feedback from real patients and their loved ones, and making decisions based on their medical conditions, experiences, needs, perspectives, and priorities.

In the current climate where the patients are increasingly becoming more empowered, life sciences and pharmaceutical companies should confront the status quo and welcome the opportunities to embrace a wide range of patient-centered perspectives presented by an emerging ecosystem.

While the technology-driven world poses challenges, it also holds opportunities to build a positive patient experience by coordinating the health ecosystem to centre on the patient. Reevaluating how it develops and delivers drugs to improve experiences and outcomes and also to continuously adapt and transform to meet the evolving needs of patients.

The industry has come a long way with utilizing a patient-centered approach. The concept has gone from a buzzword to a potential trend, to a perceivable goal.
Whilst the industry has advanced in recent years, the evolving healthcare model and ecosystem brought forward by advances in technology and more involved, empowered patients, means true patient centricity is a continuing quest and a compelling commitment.

We look forward to meeting you at the Congress!

Sincerely yours,

Jocelyn Raguindin
Conference Director
Paradigm Global Events

TRENDS & STRATEGIES IN INTEGRATING PATIENT VOICE

  • The value of engaging and communicating with the patient in every part of the clinical research process
  • Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes
    through patient engagement
  • How can patient expertise create significant value to the industry?
  • What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma?

Moderator:

Kalahn Taylor-Clark, PhD, MPH, Vice President and Head of Strategic Partnerships and Innovation, Myovant Sciences 

Panelist: 

Molly MacDonald, Founder, CEO, The Pink Fund

Heidi Floyd, Patient Experience SME, Cancer Patient, Author, Advocate

Christine Von Raesfeld, Founder & CEO, People with Empathy

  • Many biotech/pharmaceutical companies are talking about ”Patient Centricity”, but how can a company actually operate
    in a patient-centric way to create meaningful value?
  • Learn best practices to transition from being product centered to patient centered
  • Discuss strategies to embed patient centricity throughout your organization.

Judy L. Campagnari, Executive Director, Global Patient Insights & Solutions, Alexion Pharmaceuticals

John Daly, Head & VP, Patient Services Immunology & Enterprise Marketing, Novartis

  • Can digital tools and technologies drive a significant increase in patient satisfaction?
  • Improving patient engagement and outcomes through technology
  • What are the benefits of the digital health ecosystem to patient carers and the healthcare systems?

Senior Representative, Open Health

  • Patient Centricity requires new mindsets, relationships – and structures, company-wide.
  • No stage of development, from discovery through delivery, gets a pass.
  • No company function continues as before.
  • Company culture changes, too.
  • This isn’t easy but the results are worth the journey: to improve outcomes for patients and business performance alike.
  • If Patient Centricity is a fad, then it’s a failure. It should be the new way of doing business.
  • Gain insights on how they view a successful patient-centred collaboration
  • Understanding what the patient is looking for and what is important
  • Discuss opportunities for enhanced collaboration in the future
  • Valuable feedback and strategies on how to improve collaboration that makes a real-world difference

Moderator: 

Wendy Erler, VP Patient Advocacy STAR & LEAP, Alexion Pharmaceuticals

Panelist:

Cheya Pope, Vice President of Corporate Affairs & Patient Advocacy, Epizyme

Heidi Floyd, Patient Experience SME, Cancer Patient, Author, Advocate

Mark Doyle, Director, A Life in a Day 

TOPIC FOCUSED STREAM

ACCESS & COLLABORATIONS

  • Health Systems sharing clinical data to advance science
  • Patient Advocacy Group’s use of multi-stakeholder
    registries
  • 21st Century Cures Act enabling patients to have access to
    all their clinical data and agency to license
  • Combined with emerging trusted data market approaches
  • Creates the opportunity for patient-centric ecosystems at
    scale to accelerate discovery -> clinical adoption

Jason R Crites, Founder, CEO, Assurance Health Data

  • Finding common shared ground between groups and build
    tailored programs within lifecycle activities
  • How can the foundational elements of patient-centred care
    be embedded in the care culture?
  • Effectively setting a common goal to set expectations on
    both sides

Marianne Gandee, VP, Patient Solutions & Alliances, Pfizer
Oncology

  • Have patient “Advisors” on a panel for clinical trials.
  • Have a patient advocate/liaison collaborating.
  • Patient Surveys

Ambre L. Minty, Founder, Living With Dys

  • Education of the process of clinical trials
  • Listen to the Patient needs and help them to understand
    what the focus of the trial is.
  • Understanding Pharmaceutical costs of trials and research
  • Dealing with an illness with multiple organ involvement.
  • Rare Disease

Frank Rivera, President, Stronger Than Sarcoidosis

  • Learning: Balancing health system priorities and resources
    to address patient community needs.
  • Creating policy to end disparities and open access to new
    regenerative and translational therapies.
  • Increasing funding and technical support to CBOs for
    community outreach and education efforts

Ginger Davis, President, Sickle Cell Thalassemia Patients
Network

RESEARCH & DEVELOPMENT

  • Integration of the patient perspective into the development
    process
  • Challenges and strategies for improving study protocols
  • Streamline your clinical trial process to drive enrollment

Ramita Tandon, Chief Clinical Trials Officer, Walgreens Health

  • Innovative trial technologies for decentralised clinical trials
  • Best strategies to address common pitfalls and challenges
  • Considerations to optimise patients clinical trial experience
  • Defining Patient Centricity Explore “Return on
  • Engagement” work done to measure and evaluate the value proposition of Patient-Centric activities in clinical research
  • Reviewing major regulatory developments in support of patient-centred Research.
  • Gain insights from global surveys on patient and public clinical research perceptions and experiences and COVID- 19 impacts
  • Review concrete examples of industry Patient-Centric initiatives and projects

Behtash Bahador, Associate Director, CISCRP

  • Key opportunities and challenges when working virtually
  • Top tips for effective virtual patient and public involvement
  • The future: the value of continuing working virtually
  • Review existing regulatory and ethical tenets of research and how they must be incorporated into standard practices when implementing decentralization.
  • Educating and empowering the trilogy of research – sponsors, ethical review boards and the research site to fulfil the mission of decentralization.
  • Explore and partner with existing health care solutions to
    enable established programs to implement the standards of research.
  • Collaborate with shareholders to provide innovative DCT strategies to all research sites.
  • Key factors to consider in designing and operationalising
    DCT
  • Leveraging technology and trends to engage participants
    Promoting patient-centric care

CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT

  • Why diversity and inclusion in clinical trials are crucial?
  • Understanding critical barriers to minority and underserved patient communities participation in clinical trials
  • Actionable ways to improve diversity in clinical trials
  • What can the industry do to promote more diversity in the future?
  • Latest guidelines that make healthcare more inclusive

Panellist:

Tricia Mullins, Global Head, Patient Advocacy, Atara Biotherapeutics

Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive

  • How knowledge can reduce the fear of Pharma and ultimately save lives.
  • What do we really know about patient safety, both as an industry and an individual and what are the challenges we face?
  • How can technology play a role in ensuring patient safety, compliance and pharmacovigilance?
  • How we can leverage individual and collective data to ensure proper care and Quality of life while reducing damage, saving time and money.

Panelist

Christine Von Raesfeld, Founder & CEO, People with Empathy

Kristof Vanfraechem, Founder & CEO, Data For Patients

Carolina Consuegra, Co-Founder, Marketing & Strategy Director, Science2People

  • Support different learning styles to ensure patients have equal access to education
  • Patient centricity for better health outcomes
  • How to determine cultural nuances and understandings to care

Paula Orandash, Patient Engagement Liaison, PTC Therapeutics

  • Incorporating robust and meaningful patient engagement for a more informed decision-making
  • Strategies and best practices in facilitating patient recruitment and retention in clinical trials
  • Enhance understanding and use appropriate methods to capture patient understanding of the benefits and risk outcomes
  • How to best communicate patient information to support decision-making
  • What are logistical and financial challenges which increasingly impact all clinical trial stakeholders
  • Tailored approaches to travel services for the patients
  • Innovative reimbursement programmes
  • How to ensure patient safety and reliability

 

  • The importance of real-world patient data democratization
  • Common challenges in clinical data that hinders clinical trials
  • Strategies in overcoming these challenges
  • How to seamlessly integrate real-world data from a variety of sources?
  • Understanding complexities and addressing challenges faced by the industry in setting up end-to end supply chain for
    cell and gene therapies
  • Best practices and lessons learned that guarantees effective manufacturing and delivery of CGTs to the patients who
    needs them the most
  • Robust technologies and innovative platforms that connects therapies with patients both in clinical and commercial scale
  • Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully
    incorporated into drug development and evaluation.
  • Patient’s input to improve quality, relevance, safety and efficacy of drug development
  • Challenges and opportunities for patient-centric product design
  • The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real
    life?

Panelists:
Juliette Chen, Global Evidence and Outcomes Leader, Takeda
Frank Rivera, President, Stronger Than Sarcoidosis

  • Learn how medical PTSD impacts patients ranging from newly diagnosed to long-term care
  • Understand the category of ways medical PTSD can develop
  • Discover opportunities for patients and providers to collaborate to alleviate symptoms of medical PTSD

Emily Parks, Founder, POP! Pissed Off Patients

  • Putting the patient first achieves the best experience and outcome for that person and their family
  • Improve communication from staff shift-changes in a hospital to getting the patient discharged faster
  • Setting expectations soon
  • Updating goals and outcomes; timely

Barby Ingle, President, International Pain Foundation

  • COVID-19 pandemic has highlighted the need for patient-centricity, understanding the drivers for innovation in pharma
  • Partnering with patients and placing patient well-being at the core of all initiatives
  • Shifting towards disease-oriented to patient-centric
  • Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
  • Technologies that enhance the patient-centricity in pharma
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