CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT
- Why diversity and inclusion in clinical trials are crucial?
- Understanding critical barriers to minority and underserved patient communities participation in clinical trials
- Actionable ways to improve diversity in clinical trials
- What can the industry do to promote more diversity in the future?
- Latest guidelines that make healthcare more inclusive
Panellist:
Tricia Mullins, Global Head, Patient Advocacy, Atara Biotherapeutics
Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive
- How knowledge can reduce the fear of Pharma and ultimately save lives.
- What do we really know about patient safety, both as an industry and an individual and what are the challenges we face?
- How can technology play a role in ensuring patient safety, compliance and pharmacovigilance?
- How we can leverage individual and collective data to ensure proper care and Quality of life while reducing damage, saving time and money.
Panelist:Â
Christine Von Raesfeld, Founder & CEO, People with Empathy
Kristof Vanfraechem, Founder & CEO, Data For Patients
Carolina Consuegra, Co-Founder, Marketing & Strategy Director, Science2People
- Support different learning styles to ensure patients have equal access to education
- Patient centricity for better health outcomes
- How to determine cultural nuances and understandings to care
Paula Orandash, Patient Engagement Liaison, PTC Therapeutics
- Incorporating robust and meaningful patient engagement for a more informed decision-making
- Strategies and best practices in facilitating patient recruitment and retention in clinical trials
- Enhance understanding and use appropriate methods to capture patient understanding of the benefits and risk outcomes
- How to best communicate patient information to support decision-making
- What are logistical and financial challenges which increasingly impact all clinical trial stakeholders
- Tailored approaches to travel services for the patients
- Innovative reimbursement programmes
- How to ensure patient safety and reliability
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- The importance of real-world patient data democratization
- Common challenges in clinical data that hinders clinical trials
- Strategies in overcoming these challenges
- How to seamlessly integrate real-world data from a variety of sources?
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Mark Doyle, Director, A Life in a Day
- Understanding complexities and addressing challenges faced by the industry in setting up end-to end supply chain for
cell and gene therapies - Best practices and lessons learned that guarantees effective manufacturing and delivery of CGTs to the patients who
needs them the most - Robust technologies and innovative platforms that connects therapies with patients both in clinical and commercial scale
ROUND TABLE DISCUSSIONSÂ Â Â Â Â Â Â Â Â
14:00- 14:30, 14:35 – 15:05
Divided between 2 sessions of 30 mins. (5 mins. to change table) – Attendees have 2 round table options to attend
Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive
- Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully
incorporated into drug development and evaluation. - Patient’s input to improve quality, relevance, safety and efficacy of drug development
- Challenges and opportunities for patient-centric product design
- The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real
life?
Panelists:
Juliette Chen, Global Evidence and Outcomes Leader, Takeda
Frank Rivera, President, Stronger Than Sarcoidosis
- Learn how medical PTSD impacts patients ranging from newly diagnosed to long-term care
- Understand the category of ways medical PTSD can develop
- Discover opportunities for patients and providers to collaborate to alleviate symptoms of medical PTSD
Emily Parks, Founder, POP! Pissed Off Patients
- Putting the patient first achieves the best experience and outcome for that person and their family
- Improve communication from staff shift-changes in a hospital to getting the patient discharged faster
- Setting expectations soon
- Updating goals and outcomes; timely
Barby Ingle, President, International Pain Foundation
- COVID-19 pandemic has highlighted the need for patient-centricity, understanding the drivers for innovation in pharma
- Partnering with patients and placing patient well-being at the core of all initiatives
- Shifting towards disease-oriented to patient-centric
- Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
- Technologies that enhance the patient-centricity in pharma