Christine Von Raesfeld, Founder & CEO, People with Empathy
CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT
- Why diversity and inclusion in clinical trials are crucial?
- Understanding critical barriers to minority and underserved patient communities participation in clinical trials
- Actionable ways to improve diversity in clinical trials
- What can the industry do to promote more diversity in the future?
- Latest guidelines that make healthcare more inclusive
Moderator:
Christine Von Raesfeld, Founder & CEO, People with Empathy
Panellist:
Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive
John Campbell, Head of Decentralized Trials, Walgreens Health
Lesli Nordstrom, Sr. Assoc. Director, Patient Centricity & Engagement, Boehringer Ingelheim
Julie Breneiser, Executive Director, Gorlin Syndrome Alliance
- How knowledge can reduce the fear of Pharma and ultimately save lives.
- What do we really know about patient safety, both as an industry and an individual and what are
the challenges we face? - How can technology play a role in ensuring patient safety, compliance and pharmacovigilance?
- How we can leverage individual and collective data to ensure proper care and Quality of life while
reducing damage, saving time and money.
Christine Von Raesfeld, Founder & CEO, People with Empathy
Kristof Vanfraechem, Founder & CEO, Data For Patients
Carolina Consuegra, Co-Founder, Marketing & Strategy Director, Science2People
- Support different learning styles to ensure patients have equal access to education
- Patient centricity for better health outcomes
- How to determine cultural nuances and understandings to care
Paula Orandash, Patient Engagement Liaison, PTC Therapeutics
- Incorporating robust and meaningful patient engagement for a more informed decision-making
- Strategies and best practices in facilitating patient recruitment and retention in clinical trials
- Enhance understanding and use appropriate methods to capture patient understanding of the benefits and risk outcomes
- How to best communicate patient information to support decision-making
Andrea Furia-Helms, M.P.H., Director, Patient Affairs, Office of Clinical Policy and Programs, U.S. FDA
- Why measuring patient focused activity is important.
- How to translate the concept of patient centricity into tangible (and intangible) results.
- Sharing best practice in driving actionable change benefitting patients.
Mark Doyle, Director, A Life in a Day
- Learn how medical PTSD impacts patients ranging from newly diagnosed to long-term care
- Understand the category of ways medical PTSD can develop
- Discover opportunities for patients and providers to collaborate to alleviate symptoms of
medical PTSD
Emily Parks, Founder, POP!
This presentation will highlight how companies can advance health equity through people- and
patient-centered frameworks. Learning objectives include:
- Specific domains of action for addressing health equity through people and patient engagement;
- Success measures of efforts to advance health equity;
Kalahn Taylor-Clark, VP & Head, Strategic Partnerships & Innovation, Myovant Sciences
ROUND TABLE DISCUSSIONS
14:00- 14:30, 14:35 – 15:05
Divided between 2 sessions of 30 mins. (5 mins. to change table) – Attendees have 2 round table options to attend
- Different interpretations of decision making across stakeholders
- Value on patient outcomes and engagement (case studies)
- Introduce the working model of decision making.
Sumira Riaz, Managing Director – Patient Engagement Lead, OPEN Health
Sophie Tsai, Sr Scientist, Global Patient-Centered Outcomes, Engagement & RWE, OPEN Health
Teonna Woolford, Chief Executive Officer, Sickle Cell Reproductive Health Education Directive
- Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully
incorporated into drug development and evaluation. - Patient’s input to improve quality, relevance, safety and efficacy of drug development
- Challenges and opportunities for patient-centric product design
- The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real
life?
Moderator:
Monica Dudley-Weldon, President/CEO/Founder, SYNGAP1 Foundation
Panelists:
Frank Rivera, President, Stronger Than Sarcoidosis
Nélio Drumond, Associate Director, Lead Process Scientist, Takeda Pharmaceutical
Judy L. Campagnari, Exec. Director, Global Patient Insights & Solutions, Alexion Pharmaceuticals
Barby Ingle, President, International Pain Foundation
Jodie Sherman Gillon, SVP Corporate Affairs & Patient Advocacy, Peptilogics
- Understanding the drivers for innovation in pharma
- Partnering with patients and placing patient well-being at the core of all initiatives
- Real-world data and patient-reported outcomes presents the power and the potential to redesign
healthcare - Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
- Technologies that enhance the patient-centricity in pharma
Moderator:
Kalahn Taylor-Clark, VP & Head, Strategic Partnerships & Innovation, Myovant Sciences
Panellist:
Ambre L. Minty, Founder, Living With Dys
Jason R Crites, Founder, CEO, Assurance Health Data
Matthew Zachary, CEO and Co-Founder, OffScrip Health
Christine Von Raesfeld, Founder & CEO, People with Empathy
Christine Von Raesfeld, Founder & CEO, People with Empathy