9th Patient - Centered Engagement World Congress 2026 Americas
“Part of The Patient Centricity & Collaboration Series”
Driving Partnership, Access & Measurable Outcomes
17th – 18th September 2026, Boston, MA, USA
Facilitate Live is proud to welcome you to our upcoming Patient Centered Engagement World Congress 2026 Americas.
The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.
The congress focuses on “Driving Partnership, Access & Measurable Outcomes”.
Healthcare transformation has entered a decisive phase. As reimbursement models shift, digital acceleration continues, and consumer expectations rise, patient engagement is no longer a supporting initiative — it is a strategic enterprise priority. For pharma, payers, providers, and digital health leaders alike, engagement now sits at the intersection of growth, quality performance, access, trust, and measurable outcomes.
The Patient-Centered Engagement Congress convenes stakeholders, alongside patient voices, to examine how engagement must evolve from aspiration to enterprise-wide execution. This is not a conversation about isolated digital tools or satisfaction metrics. It is a forum focused on governance, accountability, technology infrastructure, workforce redesign, and performance measurement, all grounded in meaningful partnership with patients.
The congress theme is Driving Partnership, Access & Measurable Outcomes. Across two intensive days, the Congress will explore how organizations can redefine engagement as a driver of access, adherence, equity, and long-term enterprise value. It focuses on enterprise alignment and digital transformation: embedding engagement into value-based care models, breaking down cross functional silos, designing scalable personalization strategies, leveraging predictive analytics and AI responsibly, and building executive dashboards that connect activation to financial and quality outcomes. Leaders will examine what separates high-performing organizations from laggards and what board-level accountability for engagement truly requires. It also examines access, equity, and sustainable performance. As disparities in activation and adherence persist, organizations must confront the digital divide, integrate social determinants into engagement platforms, and simplify navigation across increasingly complex care journeys. Sessions will examine how inclusive design, hybrid outreach models, and culturally competent strategies can expand reach without sacrificing innovation. Leaders will also address how engagement impacts quality ratings, value-based contracts, and long-term population health outcomes — while maintaining ethical guardrails in an AI-enabled future.
Throughout the program, the emphasis remains clear: patient-centered engagement must be measurable, scalable, equitable, and strategically integrated across the enterprise. True transformation requires partnership, not only across departments and sectors, but with patients as co creators in the design of accessible, transparent, and trustworthy systems.
The Congress provides a platform for candid executive dialogue, cross sector collaboration, and practical insight into the governance models, digital infrastructure, and cultural shifts necessary to drive partnership, access, and measurable outcomes. By convening industry and patient leaders in equal measure, the event moves beyond theory to focus on implementation, accountability, and sustainable impact.
As healthcare continues to evolve, organizations that succeed will be those that move engagement from program to performance, from activation to outcomes and from intention to enterprise impact.
We look forward to meeting you at the Congress!
Sincerely yours,
Jocelyn Raguindin
Conference Director
Facilitate Live
GAIN LATEST INSIGHTS ON:
By the end of this Congress, participants will be able to:
- Evaluate the strategic role of patient centered engagement as a driver of enterprise value, quality performance, and competitive differentiation in a value-based healthcare environment.
- Assess governance and organizational models that embed engagement across commercial, medical, operational, and care delivery functions to ensure enterprise wide alignment.
- Analyze the impact of digital transformation, including AI, predictive analytics, and interoperability, on scalable personalization, activation, and measurable outcomes.
- Interpret engagement performance metrics and executive dashboards to connect activation, adherence, and patient experience to financial, quality, and contract-based performance indicators.
- Examine the integration of engagement strategies within value-based care contracts, reimbursement frameworks, and national performance benchmarks.
- Identify evidence based approaches to improving access, reducing friction across the care continuum, and strengthening patient navigation models.
- Apply inclusive engagement strategies that address disparities, integrate social determinants of health, and close the digital divide without compromising innovation.
- Evaluate ethical and governance considerations related to AI-driven personalization, data usage, consent, and bias mitigation in patient engagement platforms.
- Compare workforce and operational redesign strategies necessary to scale engagement initiatives across multi-state and multi- stakeholder systems.
- Develop actionable executive-level priorities for advancing partnerships between patients and industry stakeholders to drive sustainable access, trust, and long-term outcomes.
WHO SHOULD ATTEND?
This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology and healthcare companies.
Network with Presidents, Heads/Chiefs, VPs, Directors, and Managers in the area of:
- Patient Engagement
- Patient Services
- Engagement Strategy
- R&D Patient Engagement
- Medical Affairs
- Commercialisation
- Marketing
- Regulatory Affairs and Policy
- Patient Support
- RWE, and Data Management
- Quality and Compliance
- Clinical Development
- Programme Management
- Supply Chain Management
- Patient Access
- Clinical Research
- Digital Accelerator
- Patient Engagement &
- Portfolio Strategy
- Patient Support Strategy & Insights
- Patient Experience
- Global Patient Advocacy & Alliances
- Government Policy and Advocacy
- Digital Patient
- Experience Lead
- Clinical Operations
- Clinical Insights and Experience
- Head of Strategy, Access Services
- Vice President, Site Collaborations and Patient
Centricity - Head of Neuroscience
- And much more…
Christian Rubio, Executive Director, EverythingALS
Co-Designing Engagement with Patients
- Moving beyond patients as passive recipients to active collaborators.
- Establishing mutual responsibility for clinical and engagement outcomes. Building foundational trust to support all engagement efforts.
- Designing organizational systems around the actual needs and experiences of patients.
Moderator:
Linda Kollmar, AVP, Patient Insights & Engagement Value & Implementation, Merck
Panellist:
Jessica Bateman, Senior Director, Advocacy & Professional Relations, Geron Corporation
Tom Croce, VP, Global Patient Advocacy & Engagement, Jazz Pharmaceuticals
Nikki Rohan, VP, Global Advocacy and Community Engagement, Bicara Therapeutics
Jaye Bea Smalley, Executive Director, Patient Advocacy, Kyverna Therapeutics
- Discussion points to follow
Amy Grover, Executive Director of Patient Advocacy at Catalyst Pharmaceuticals
- Strategies for collaborative experience design.
- Ensuring digital platforms meet diverse patient needs.
- Establishing metrics to evaluate collaborative success.
- Governance frameworks for sustained partnership
RESERVED
- Ensuring all tailored experiences are built upon explicit patient consent.
- Implementing rigorous protocols to identify and address algorithmic bias.
- Providing clear, accessible insights into how data is utilized.
- Maintaining essential human oversight in all AI-driven decision-making processes.
- Design trials around participant convenience and accessibility.
- Improve equitable access and representation by expanding community-based research.
- Strengthen participant retention through transparent communication and culturally responsive engagement.
- Leveraging digital tools such as eConsent, wearables, telehealth, and mobile applications.
RESERVED
Stream Session A: CONNECTED CARE ECOSYSTEM
- Addressing misinformation in healthcare and medicines
- Ethical patient communication strategies
- Rebuilding confidence in healthcare institutions
- Developing strategies to manage and correct inaccurate information proactively.
Yiyi Xia, Senior Director, Patient Engagement Strategy and Operations, Sarepta
- Developing flexible frameworks that integrate both digital and physical touchpoints to reach a broader audience.
- Implementing accessible messaging and outreach tools for individuals with limited technical proficiency or high-speed connectivity.
- Identifying and addressing the specific geographic and socioeconomic barriers that hinder participation in these regions.
- Evaluating the hardware and infrastructure requirements necessary to support sustainable digital inclusion.
- Reducing administrative friction to ensure faster access to necessary treatments.
- Providing immediate clarity on coverage to allow for more informed decision-making.
- Guidance to navigate the complexities of specialized medical needs.
- Integration of financial support resources to help patients manage out-of-pocket costs effectively.
- Enhancing patient participation to drive better health outcomes.
- Ensuring engagement strategies directly support performance metrics.
- Incorporating direct patient feedback into clinical workflows.
- Utilizing data visualizations that accurately reflect the lived experience of patients.
Amy Mackey, US Patient Advocacy, Attending Physician, Merck
- Developing the necessary skills for empathetic and effective interactions within the healthcare workforce.
- Implementing core principles to ensure care delivery is sensitive to the history and needs of all patients.
- Strengthening the ability of staff to engage respectfully and effectively across diverse cultural backgrounds.
- Strategies for aligning organizational incentives directly with patient experience outcomes.
- The Common Thread the human Experience
- Negative language in medical records-Non Compliant without the “Why” question
- Lack Cultural Competence related to the Elderly Black Population
Mauvareen Beverley, Patient Engagement and Cultural Competence Specialist
Stream Session B: PATIENT CENTERED RESEARCH
- Exploring how machine learning algorithms can analyze vast datasets
- Assessing the role of remote monitoring tools in gathering continuous, real-time data to improve trial accuracy and reduce the burden of on-site visits.
- Addressing the ethical imperatives of AI implementation, specifically regarding how to mitigate algorithmic bias and maintain patient trust through transparent data practices.
- Perspectives on AI-supported engagement
Behtash Bahador, Senior Director, Community
Engagement & Partnerships, CISCRP
- Building authentic relationships through localized partnerships with faith-based organizations and health clinics.
- Developing protocols and materials tailored to diverse linguistic and cultural needs.
- Addressing logistical barriers like transportation and scheduling through decentralized trials or reimbursement programs.
- Establishing benchmarks for success based on longitudinal trust, community impact, and staff diversity
- Analyzing remote monitoring and nursing visits for data integrity and retention.
- Technology access and digital literacy
- Evaluating and mitigating logistical shifts from clinics to families.
- Reviewing hybrid trial case studies to optimize the participant journey.
- A presentation that will provide you with insights and experience in developing and executing a succesfull digital patient recruitment strategy all the way from catching early awareness upon til enrollment.
- You will also be presented with specific examples of communication materials and advertisement and the do’s and dont’s of running digital patient recruitment for clinical trials.
Rasmus Hjorth, Patient Engagement Director, James
Lind Care
- Discuss how patient-centricity revolves around patient feedback and why this is so imperative to retention rates.
- Call to action to implement Patient-Led Trial Design and what that looks like.
- Ways pharma can best collaborate with non-profit partners to support patient resources and patients involved in clinical trials, featuring a real example of how Serenely Guided Foundation achieved this together with the rare community and what success looked like.
Sarah Woods, Founder, Serenely Guided Foundation
- How a simple “patient experience” initiative transformed trial engagement
- Building personalized, non-clinical support systems to create a sense of partnership, not participation
- Demonstrating the tangible impact of patient centered care on trial recruitment and retention
Corey A. Straub, Patient Advocacy & Engagement
Lead, QurAlis
- Identifying the systemic hurdles that prevent genuine collaboration between industry, healthcare providers, and patients.
- A critical look at current institutional gaps in patient engagement.
- Discussing how organizations can remain answerable to the populations they serve.
- Establishing clear benchmarks for what meaningful, patient-focused outcomes look like.
Moderator:
Panelist:
Julissa Viana, SVP, Corporate Communications, Investor Relations & Patient Advocacy, Verastem Oncology
Equity, Access & Sustainable Outcomes
- Developing targeted strategies to ensure all patient populations are empowered to engage with their care plans consistently.
- Incorporating non-clinical factors into engagement models to provide more holistic and effective support.
- Building and sustaining collaborative relationships with local organizations to bridge the gap between industry, healthcare providers, and the communities they serve.
- Establishing robust metrics to track progress and ensure that improvements in patient engagement lead to equitable health outcomes across all demographics.
Moderator:
Panelists:
Erica Alshehabi, Sr. AD, Patient Recruitment and Representation, Boehringer Ingelheim
Tricha Shivas, Chief of Staff and Strategy, Foundation for Sarcoidosis Research
Linda Kollmar, AVP, Patient Insights & Engagement Value & Implementation, Merck
- Partnering to translate insights into evidence-based publications that elevate the community voice
- Uncovering unmet needs to drive meaningful differentiation
- Engaging patients where they are through unique, community-centered approaches
Jordanna Mora, Vice President, Patient Advocacy & Centricity, Beam Therapeutics
- Understand and address access to technology that influence digital health
- Utilize digital tools that address language barriers, educational and cultural differences across populations to create partnerships for digital literacy.
- Pair clinical trial data systems with community-based approaches; incorporate telehealth, and other low-friction platforms that communities typically use and trust
- Address affordability / infrastructure issues related to digital literacy
Laura A. Williams, Chief Patient Officer, ardelyx
- Low-bandwidth engagement strategies to support users with limited internet connectivity.
- Multilingual platforms to ensure linguistic inclusivity across diverse regions.
- Rural outreach solutions that are designed to connect with underserved and remote populations.
- Community partnership integration to leverage local expertise and build sustainable engagement.
RESERVED
- Ensuring transparency for both providers and patients at the point of care.
- Streamlining workflows to reduce administrative delays.
- Enhancing the management of complex treatment plans.
- Connecting patients with the necessary resources to mitigate rising costs.
- Increased competition for eligible patients continues to cause significant delays in trial timelines.
- Successful enrollment is becoming more dependent on flexible participation options and simplified protocols to improve conversion rates.
- Clinical sites are experiencing a rising workload to maintain patient engagement and prevent attrition.
- Predictive analytics and AI are becoming essential tools for improving patient targeting and preventing dropouts.
RESERVED
- Developing flexible frameworks that integrate both digital and physical touchpoints to reach a broader audience.
- Implementing accessible messaging and outreach tools for individuals with limited technical proficiency or high-speed connectivity.
- Identifying and addressing the specific geographic and socioeconomic barriers that hinder participation in these regions.
- Evaluating the hardware and infrastructure requirements necessary to support sustainable digital inclusion.
Christian Rubio, Executive Director, EverythingALS
- Establishing direct links between patient engagement and clinical or quality results.
- Leveraging insights gained from patient experiences to inform our strategies.
- Evaluating the long-term effectiveness of treatments.
- Providing clear evidence of value to healthcare systems and payers.
Tricha Shivas, Chief of Staff and Strategy, Foundation for Sarcoidosis Research
- Understand the scale and patterns of today’s patient cost burden in employer-based plans
- Learn how patient costs changed compared to wages, insurance premiums and medicine prices
- Recognize who benefits – and who is left exposed – under current benefit designs
- Learn from evidence in West Virginia how point‐of‐sale rebate pass‐through changes patient costs and medication use
- Hear more about J&J’s engagement with patients to understand barriers with insurance design
Ulrich Neumann, Director, Access & Policy Research, Johnson & Johnson
- Establishing shared goals to ensure all parties are working toward the same objectives.
- Fostering collaboration between healthcare systems, industry partners, and advocacy groups.
- Identifying successful engagement strategies and implementing them on a national level.
- Developing consistent benchmarks for patient engagement across the industry.
Moderator:
Dakar De La Cruz, Global Director, Patient Advocacy, AstraZeneca
Panelist:
Linda Kollmar, AVP, Patient Insights & Engagement Value & Implementation, Merck
- Defining what a meaningful patient partnership looks like in practice.
- Aligning incentives across diverse healthcare stakeholders.
- Strategies for scaling successful engagement models on a national level.
- Proven methods for building a healthcare system that patients can fully trust.